Amanda's Guestbook:

I can't wait to read your book! I have been praying for Amanda for four years now. My 8 year old daughter has FSGS too. Reading Amanda's story, seeing her strength and that of her mother's Tracy has given me strength. Lynn, you are a wonderful friend to do this for them. May God richly bless you all.
Beth A. Turner
Hi Amanda ,Tracy & Jessie. Each day we continue to pray to God for you, knowing that He can do all things, since He created all things and everyone. We miss seeing you, Tracy and Jessie at First Baptist Church. We do see Jacob, but he isn't as pretty as you. We have two Scottish Terriers who also want to see you when you visit us again. However, they might lick the nose off your face. Loving you always, in Jesus our Savior and Lord - Ken & Annita Ready.
Ken & Annita Ready
My son Matthew Waite has just been diagnosed with fsgs and tubular hypertrophy. He deals with frequent severe migraines (throwing up) and have occurred at times when I as a mother also noticed his fluxuating blood pressure. We have an appointment at Loma Linda in April 2006. Is it possible that these migraines are related to his kidney disease?
Teresa Waite
I was looking for info on cell cept and rapamune and I stumbled upon your story. You are a very brave little girl! When I was 12 yrs old I had a liver transplant. I waited for 16 months to be transplanted. I was in and out of the hospital all the time. It was the longest battle I fought. I am 22 now and I have a daughter of my own. I am doing well now--I know things will turn out ok for you! Just keep your head up and keep praying! You are in my thoughts and prayers!
Kelly
03/24/06 Dear Amanda, I am so excited to hear that you have accepted Christ as your personal Savior! Praise the Lord! I will look for your picture in the People magazine. I hope by the time you get this note that you are feeling much better. I am so sorry you have had to be back in the hospital. You all are in my heart and prayers. Tracey, I'm lifting y'all up! Love, Mrs. Beth
Beth Turner from Georgia
Hi Amanda, I have been reading your mom's emails for a long time and thinking about you. I saw your picture in the People Magazine. Wow! I will keep it! I sure hope you continue to get better. We will keep you in our prayers. Love, Robyn Marcak
Robyn Marcak
Hi,Amanda how are you doing?I hope your okay.I'm now in 5th grade almost in 6th grade tell Jessica that I said hi and I really miss you guys.I hope I get to go up and visit you.BYE!
Cheyanne,Rushing
Amanda is a very pretty girl. I have had kidney failure since I was 9 years old and came across this site. I am now 32 and have had a transplant for 11 years but am on dialysis again for the last 5. The courage of a child is amazing throughout the years that a child grows. I know my childhood was very hard and anything but normal. I just wanted to say she is an amazing and beautiful young girl. Good luck!
Angie
Hi Amanda! my best friend and I have been thinking about holding a fundraiser for you in our park. we have to wait for summer because it is freezing. We still have snow on the ground. Also in school Iam doing a report on FSGS and I hope to spread the news with the fifth grade. Maybe i can tell them about your website! Gee I hope you feel better, it must not be easy. Try and E-mail me back! :)
Katelyn Klimowich
Amanda, Kaitlyn and I miss seeing you at Stanford and continue to pray for you and your family. You always put a smile on Kaitlyn's face. Tell your mom we said hi.
Kelly and Kaitlyn Rose
Dear Amanda, I'm so glad you're enjoying your Crocs! I love mine too. Love, Mrs. Beth
Beth Turner from Georgia
hi this is krystine and i was just wondering how you were doing and i just wanted to say hi
Krystine Redmond
to amanda and family, I am keeping you in my prayers. I hope this finds you and your family well. Please keep me updated. Thanks
Ashleigh Clute
It brings me sorrow that people cry for wanting a toy, or for wanting their way, while others cry for the sadness and pain which lies beneath their hearts. Just remember that their are people who care for you. You are a good role model for anyone.
Claire Lazar
My daughter Madison is 6 and is in the first grade. I also have a son named Matthew who is in the 4th grade and is 10 1/2. We found out Madison was sick the fall of 2003 when she was diagnosed with Nephrotic Syndrome. The normal story of waking up with swollen eyes and severe edema was how it all came about. I really think she had it long before then as there were little symptoms along the way but were always passed off as nothing to worry about by her pediatrician. She had her first biopsy that year and has had one each year since then. She just had her third one and we went yesterday for the results. To look at her you would never know she was sick. She feels good and is able to go to school and do all the normal things a 6 year old should do. However, the disease is there and is progressing in spite of the many medications she is on. We know the meds help and are what is keeping her from being in the Nephrotic range, but the meds aren't stopping the progression. We were heart broken yesterday to learn that the disease has gone from 5% scarring to 25% just in the last year. We had hopes that there would be no or little additional scarring, but it wasn't to be. Madison being only 6 has no idea of what can happen nor understands why I was crying yesterday as we got that news. She is very smart but she is too little to be told what exactly is going on with her body. She just knows she has to take a lot of medicine and has to have blood drawn a lot. We continue to not let our faith be wavered and trust in the Lord to take care of Madison and get us through this. We also try to help the Nephcure organization by hosting an annual golf tournament each year. When Madison first got sick I stumbled across Amanda's website in my desperate attempt to find answers. I have been praying for Amanda ever since then, as well as Tracey and the rest of their family. I draw strength from Tracey as she pours her heart out on the website. So their site has been a source of inspiration and such a blessing to me in spite of the hardship and trials they face. My heart aches for Amanda and it is not out of sympathy but out of compassion that I try to let them know we care. I try not to be afraid of what the future holds for us but it is hard. We do have so much to be thankful for in spite and we give God the glory for those blessings. I believe God wants us to bloom where we are planted so that is why I pray for Amanda and do what I feel led to do to help. I try to be an encouragement to others facing this same thing, that's what the Bible says to do. Take care, Beth
Beth Turner
hey how u doin ythis is Andrea i had nephrotic syndrom to but i just believe in god and i kept sayin i am healed and guess what im doin graet on more med no more nothing i havin been sick for like 10 months im doin greatso i hope u doin good to i been prayin for u and my family so i hope god bless u and healed i want u to get betta put u will soon real soon u wish will come true if u just believe in yourself and god..................love Andrea <3 hope u get betta soon
Andrea ~N~Family
Amanda, We are sending our love and prayers for your body to become healthy again.
Your Friends
Hi Amanda, I'm from the LLU dental school and listened to you telling your story in December '05. I will keep you in my prayers and on my church prayer list. I'm excited for your upcoming trip to Disneyland and hope you are feeling well enough to enjoy it soon. I wanted to visit you in your room at the hospital, but was unsure where you were. If you are up to a visitor, please let me know.
Margie
Amanda&Tracey, Keep up the faith,it will get better.My prayers are with you. Helen Guzman
Helen Guzman
Hi amanda. I have kidney problems too. I will keep you in my prayers. Is there a place to send you a card? If you would like to visit my page drop me an email.
pam
Amanda & Tracy, I have lost touch with you. Please call me 888-465-3849 ext 4 at the Chargers or on my cell 858-722-6752. My son, Brandon, had his transplant Oct 4th of 2004 at Stanford.
Linda Gandy
Dear Amanda, It's Katelyn again. I'm still praying for you and I still believe that you can be cured. I hope you have a happy holiday and that you get a lot of presents. Merry Christmas and a hppy new year!
Katelyn Klimowich
how i can send you help pls. advise me coz i am live in india. Masoom Akhtar Ansari
New Delhi. India
Hey Amanda, how is my favorite camper?? I have been hearing some great stories about you swimming and heard that you have become a great diver!! I can't wait to see next summer at camp! Hope all is well...tell your family and Dr. Yorgin hello for me. I hope you have a wonderful Christmas and the new year is filled with lots of laughter and great health.
Cathy Costaglio
Hi Amanda & Tracey... it is Brandy from Packard. I heard about your site and thought I would check it out, we all miss you and hope all is well for you at Loma Linda. You are such a sweet girl and I am sure that you are making friends with just about everyone, just as you did at Packard. We hope to see you at camp again next summer... send me your e-mail, I have some great pictures of Amanda from camp.
Brandy
Just a note to let you know that our family here in Georgia is still thinking of you...in our hearts and more importantly in our prayers. Our little Madison has FSGS too, she is 6. I just wanted to wish you all a Merry Christmas. With Love,
Beth Ann Turner from Sandersville, Ga.
Dear Amanda, You are a beautiful and amazingly strong little girl. My best friends daughter was diagnosed at the age of three with Nephotic Syndrome. She had a tough year but is doing well. I will keep you in my prayers. I was really touch when I read your story. God Bless you and your Family. Happy Thanksgiving. Denise Cameron
Denise Cameron
Hi Amanda, I hope you get well soon I really miss you.
Krystal Byars
Hi Amanda, I just learned about your story on the website today from your grandmother. I spoke to her on the phone today to reach your mother. I have been reading your story for a long time and thinking about you. I wish I had known about your situation long time ago. I guess your mother and I lost contact for few years. I am so sorry to hear about what is happening to you. I am shocked. I sure hope the doctors can find a cure to ease your pain. We will keep you in our prayers. By the way, your mother and I were roommates in college back in the late 80's. I miss talking to her. I hope to hear from her real soon. I will be coming out to California the first week of October.
Robyn (Slaughter) Marcak
My 6 year old daughter has been recently diagnosed with Nephrotic Syndrome. After 3 months of steroids, IV pulses and even chemo she has not responded. We are going to do her biopsy this thursday to confirm the diagnosis of FSGS. When I showed my daughter her pictures, she said "hey mom she is wearing a mask just like me" I explained to her that Amanda has the same disease and how brave Amanda has been. Thank you for sharing your story. I know there are many ups and downs of this disease, but sharing those ups and downs can keep other parents aware of symptoms to watch for and treatment options. We pray every night for a cure and know we are praying for you too Amanda! Thanks and God Bless.
Renea Orr
Hi Amanda, I hope you get better I miss you. E-mail me if you can. I want to go visit so i,ve been begging my mom to go see you.I Hope to see you. bye.
Cheyanne Rushing
HI MY DAUGHTER HAS FSGS AND SHE STAY SICK A LOT IF I HAD ANY MONEY TO GIVE YOU I WOULD BECAUSE I KNOW THE PAIN YOU ALL ARE GOING THROUH IT HAR WHEN YOU JUST DONOT KNOW WHAT THE NEXT DAY WILL BRING TO I HOPE YOU GET EVERE THING YOU NEED FOR YOUR CHILD I WILL PRAY FOR HER AS WEL I PRAY FOR MY CHILD
MUSETTE SPLUNGE
Tracy you are always in my thoughts and prayers. I e-mailed a couple of years ago, but just this night rethought of you guys. God Bless
Janet Hinds
amanda, Hi, I am jessica and I am 13. I play for samaba and am on the B u14 girls team. your dad coacjes the A team. I am so sorry about what has happened to you. You are an amazing little girl and are so strong. you and your mother are incredible. I will pray for you every night and hope that you get better. I am truly amazed at how strong and hopeful you still are. I ca only wish the best for you and your family. I know you will have a life of succes and happiness after this disease passes you. You will bat this disease. Good Luck. I know you can do it. love always, jessica<333
jessica
Dear Amanda: Just yesterday I learned about your web page from some friends of yours in Carson City. I wish I had known sooner. I have known your Grandpa, Grandma and your Mom for many years. I have known about your problem for a long time and have kept you in my daily prayer. I pray that God and His Son Jesus will performed on you the greatest miracle that the world has ever heard of. Also tell your mom that MISTER Turner wrote you a short note. Your Mom grew up with my daughter and some day God willing I'll tell you of the troubles that they got into together. In all the years that I knew your mom I could never get her to call me Norm it was always Mister Turner. Dear God, bless Amanda and if it is Your Will bring her healing. Please send your Holy Spirit to bring her comfort and peace. In the name of our Savior JESUS I pray. Next time you read your Bible please read Roman: 8: 28-39 Give my love to your mom and grand parent and you a special hug from MISTER Turner
Norm & Mable Turner
Hi Amanda - I wanted you to know that I am thinking about you and praying for you. I have a son your age. I read that you did kayaking at your camp. My son Taylor has never kayaked before. I did one time in Monterey and boy was it fun. I saw some otters in the water. I hope you saw some interesting things too. I have you and your family in my heart.
Fayne Muldoon
Dear Amanda, My name is Nikia Taylor I'm 17 years old and im from Chicago, Illinois. I know we don't know each other very well but you are such a beautiful young lady, and i really do hope you get better really fast. You will be in my prays every night and that is a promise. Sincerly, A new friend Nikia Taylor
Nikia Taylor
Oh, Amanda! I have been praying for you evernight and I hope that you're doing better. I hope that you start to get better. I pray that you overcome this FSGS, but having kidney diese isn't going to stop you from enjoying life. Infact, I know that no matter what happenes you'll be strong. I am also praying for your family. Tell your mom that she is a strong spirited person. You are too. Your whole family is strong spirited. I hope that someday you can overcome this FSGS and until then I'm praying for you.
Katelyn Klimowich
Amanda My little brother whom is now 10 was diagnosed with Nephrotic Syndrome when he was a bit before 7 i think. He is in remittion right now but that doesn't mean he's all better. My brother now he has a lot of troubles he has asthma, stomach relex, some lung desiase and now he has to get 3 more opperations.. he just had one a month ago. His next one is june 1! He is a typical 10 year old. He loves hockey, haning with his friends, playing on his inline and ice hockey team, going to his hockey academy (school), watching tv, the typical kid thing. I am 14 and i have had to be his sister and help him with this and it's really hard so i know how your sibblings feel! Its rough but in the end it all pays off to have the person ill better right? Well my thoughtd and prayers are with you, Amanda, and your family! love Kersten please feel free to email me!
Kersten
my grandaughter has just been diagnosted with MCD and possible FSGS. Where can we turn for information.
Tere Hodges
My daughter Kathleen has been a patient of Dr. Cutler's at Loma Linda Medical Center since he diagnosed her at 22 months of age with MCNS. He and his partner, Dr. Sahney, are excellent nephrologists and look forward to working with Dr. Yorgin. I am anxious to meet Dr. Yorgin and find out more regarding his plan of treatment for kids with FSGS. My daughter Kathleen's nephrotic syndrome progressed to FSGS last year and she was placed on the national transplant list in November of 2004. She received her new kidney on April 20, 2005 at Loma Linda Medical Center. She is currently undergoing plasmapharesis 3 times per week with excellent results so far. I too hope we can find a cure for this disease so that other children will not have to suffer as ours have. I have contacted a doctor at Brigham and Women's hospital in Boston who is currently doing research on familial FSGS. I hope to include our family in his research as they seek to find a cause and cure for this disease. I hope we will have an opportunity to meet sometime as we share our struggle for a good life for our daughters. Sincerely,
Frances
Tracey. This is Tracy. It has been awhile, we have both been battling with diferent aspects of kidney disease. I apologize it has taken some time to follow up, but, I pray for you, Amanda, and your family every day. We live in So Cal, so if you ever need a shoulder to lean on or anything, please remember that I am right here for you. Unfortunately, it is hard for many to understand all of the complications and effects of kidney disease, and how many different aspects there are. Please, please let me know if I can help in any way. Love, Tracy
Tracy Hastings
Dear Tracy, Amanda and family: I am a friend of Amy Lenord's in Colorado and have been following your stroy. I feel very drawn to your situation for many reasons, yet my situation is different. I am the daughter taking care of my mom who is still very young for all that she has endured in the past nine years. I have young children of my own that pulls your struggles to my heart. I hear similar requests and stories form my mom as I hear Amanda. (I have a little sister named Amanda ;) I am anxious to purchase several of the bracelets to visually spread the word for financial needs. I have a very deep understanding of both of your feelings and send you prayers each day I speak with God. I am certain he is listening and everything truly does happen for a reason. Keep remembering this Amanda: Every day is a good day, some days are better than others, but everyday is good! My mom and dad have been telling me that since I was a litte girl. There is much to hold onto i that little sentence. I send you warmth and the strength wrapped in a deep long hug. My thoughts are with you often. Be strong and hold onto the love in your family, it's the very thing that gets me through each day! Love, Kim Slayton
Kim Slayton
Get better soon, Amanda. Always remember that God loves you and watches over you every day. My daughter is due to have a baby in two weeks. She already has a little girl almost three. There's a special place in my heart for little girls as I have four daughters of my own. Love,
Pat McCage
Amanda... you seem to be the strongest little lady there is! May God continue to watch over you and your family and give you the blessings you deserve. I am a friend of you mom's friend, Lynn. Continue to be strong....
Kim Rogers & family
Amanda I truly hope you are feeling better. It's Katelyn again. I would love it so much for you to feel better. I told this to my friends and I think it will make you feel better. You should say "I think I can, I think I can,"and you should say that a lot. I really hope you get better.
Katelyn Klimowich
Hello Tracey! This is #14 remember me? Lori Shelly- I have been praying for Amanda and hope that God looks over her closely during this tough time. Please know that I and my family are thinking about all of you at this time. Sending many smiles, hugs, prayers and tons of love your way!!!! Please take care, #14 Lori
Lori
Hi Amanda- My name is Amanda too! My Mom (Lesley Plank) played softball with your Mom at CSUN. I'm sorry you are not feeling well. I will keep you in my prayers and will think of you often.
Amanda Phillips
Dear Amanda and family, Just a note to let you know our family still has you in our hearts, thoughts and prayers. Our daughter Madison, who will be 6 on 05/19, has FSGS too. Yesterday we hosted a golf tournament for Nephcure in hopes to raise awareness and funds towards finding a cure for everyone dealing with this dreaded disease. You were in my thoughts yesterday as we were so blessed with support at our tournament. Ed Hearn, former NY Mets World Series '86 baseball player, joined us for the day. He took time to shake hands and meet everyone there. He too has FSGS and knew what we are going through. He delivered an inspirational message encouraging everyone to "keep swinging" in spite of life's curves. Amanda, I encourage you to keep your faith. Jesus loves you now as much as ever. There won't be any need for medicine or needles or pain in heaven. We have that to look forward to. In the meantime, try to remember that though the nurses have to inflict physical pain, they do so because they want you to get better. They give their life to help others. I don't know how they do it, but I am glad they do. Tracey, you are a wonderfully strong mother, you are an inspiration to me. Thank you for taking the time to keep us updated on your lives. Don't feel guilty when you don't have time to write, just know that we are still praying for you.
Beth Ann Turner from Sandersville, Ga.
Dear Tracey, Amanda, Jacob and Jessica, We miss you and we are very, very sad and concerned to read your messages of all that you have experienced during these past months. So much difficulty and also so much love and faith. We will always keep you in our prayers. My niece, Alison Hansen was diagnosed with Henoch-Schonlein Purpura in January. She lives in southern California. I think that maybe she has been to Loma Linda. I just thought that I would mention her name just in case you had met her in the hospital. Both she and Amanda are two of the prettiest little girls. We will share your story so that heaven will receive so many prayers in love for you. We are with you.
Gail Struble & Family
Hi Amanda - We are praying for you. Miss you at church. Take care sweetheart. Remember Jesus Loves you more than anything. Hope you can come back to church soon.
Bob & Barbara Sanders
Our daughter, Trinity, age 5, has had many health related issues. They do not come close to little Amanda's. God bless your whole family. Hugs and the warmest wishes in hopes for a cure. I know how hard it is to see your little one hurt. Hopefully she will get better soon.
Mom of Three - Terrie Slayton
Amanda, I am a nursing student who recently learned about Nephrotic Syndrome and am writing to let you know that your story is both very inspirational and educational for myself and peers alike. Stay strong.
John Garcia, Corpus Christi, TX
Hi Amanda it's Cheyanne I miss you alot I hope your doing please write me when you can
Cheyanne Rushing
Ih I hope you fell better my famliy is praying for you.I am vary sorry.My famliy is conting on you.You are a vary brave girl.Well my famliy is praying for you good luk.
Amanda M.cole
Hi Amanda It was great to see you at church the other Sunday. I think you look great. Your smile is heart warming. The Loma Linda Hospital is the best yet. My grandmother was a patient there. Our family is grateful for the help, love, kindness and care she received. Amanda. sometimes it's impossible to understand why things are going on, but this I do know, God does see us through everything. Right now He has given you a friend, Kelly, to be with, encouraging and listening and talking to. I continue to pray for you and your family. You are really helping me. Much love to you.
Marilyn Roanhaus
Amanda: My son Nathian just had his heart/kidney transplant last Friday, he is doing well. We found your amazing story on a search on the Internet. We just want to wish well and tell you that you are on our prayers. Say hi to your sister. brother, mother and randmother and God bless you all.
Juan Gomez
Dear Amanda, im soo proud of you that you survived the kidney trans plant.im glad you are getting better . you will always be in my prayers and dreams! god bless you child!
nikki miller
Dear Amanda its Katelyn again!I was reading your story again.I said to myself..."god is with you all the time every time,so if you believe you will come over this so called 'FSGS.'...so say you think you can and always believe.I wish i could meet you so badly.You look like great friend,person and daughter.Keep up the good work!
Katelyn Klimowich
hey amanda im soo sorry about your kidneys . my friend katelyn klimowich told me all about you . your with me in my dreams and prayers.get well soon!!
nikki miller
Hello Amanda, I hope you are feeling good and wanted to let you know that I am thinking of you, always. Today is your moms Birthday and tell her I wish her an absolutely wonderful day. She is such a strong woman and I respect and admire her strength. This web site has done so much in getting the word out about this disease and your mom takes the time to answer every message she can while managing her very busy schedule of school, hospital visits and alot more. There has been college professors and nursing teachers write in and ask questions to you and your mom. There have been many families who have written in to ask questions about something their child or loved one has been experiencing related to the disease. This web site and your mom have done a good thing in informing those who wanted and needed to know about this disease as much as she can. How many times can I say how proud I am of you and your mom and the incredible strength you both have. Tracey, I wish you the Happiest Birthday I can ever wish to anybody. Love, Lynn
Lynn
Amanda,I met your grandma on the airplane a couple weeks ago. I told her we would keep you in our prayers. I have an 11 yr old daughter. We will both be praying for you and your family.
Joy Lewis
Amanda you truly are an insperation to all of us. Your in our thoughts and prayers.
Dr. Aghakhanians
omg that story is so sad i hope everyone is alright have a wonderful life.
Danielle
Dear Amanda: I teach nursing at a college in Texas and I was surfing the net for a cool site about Nephrotic Syndrome. I like to have students read 'real' stories about different problems because ya'll can tell it so much better than me. So, for homework, 50 of my students are going to visit your site. Its a wonderful site and I think you will have alot to teach them. What I want to know --- is there anything you think you'd like nurses to know? Like, what do you think they could really learn to do better (based on your experiences). I'd like to know too because even though I teach, I still work in a pediatric ER here in Corpus Christi. Anyway, good luck with your new kidney and thanks so much for sharing your story.
Liz Whitehurst
Dear Amanda, I am very moved to haer your story. You are very brave. While I was in the middle of your story, i was scared that there would be a bad ending, when I finished the story, I was so glad the you were alright. I hope that you live to my a hundred-and-ninty-nine years old. May ypu have health and happiness always. Love forever, Rebecca
Rebecca Simensky
Amanda how are u today
Laurissa Schellenberg
Hello Amanda, Tracey and brother and twin sister. I went onto your website to get an update on Amanda and see a lot is going on that is out of your control. We are the other Carson City people who are treating at Stanford, but recently ran into a road block and flew back to the Cleveland Institute for a new regimen of care. Ashley is responding quite well, after both, she and I took a break from our normal routine and I left my state job and she left her high school and twin sister to receive home tutoring. Today, January 28th, marks Ashley's 1st full week of full time studies and she's ready to attend her 2nd drivers training class tomorrow all day at the community college. I know you and the family have huge faith and I would ask you all to stay strong. I will pray for Amanda tonight and update my girls of her situation. Tracey--I will be in Stanford next Friday for a check up and will try to see you--hopefully not in the hospital. Our love and prayers--Jean Ann, Ashley & Briana
Jean Ann--Carson City, NV
THIS IS ALL THE KIDS NAMES IN ARE CLASS,JACOB,TAYLOR,KENZIE,MALLORY,NYCOLE,WYATT,KYLEE,CHACE,
hi amanda how are you doing i hope you will get better i bet it is hard being sick all the time
Jacob andZak .
Hi Amanda, I was just going through alot of old papers to file, and came across "Your Story" that I had printed and saved. You probably don't remember me, but I met you at the Ronald McDonald House in California. I am Ty's Mom. His little sister was in the same hospital as you were. How are you and how is your Mom? Tell her hi for me! I have tried to e-mail her several times, to ask about you, but the e-mail only returned to me. I think of you often, and hope to hear from you, Love, Leah & Ty
Leah & Ty Kirk
DEAR AMANDA,HOW ARE YOU DOING? I HOPE YOU GET BETTER SOON.
JACOB
HI amanda hope you get better we are praying for you.
chace
Amanda: My thoughts and prayers are with you. You are very brave!!! Please know that people are out there that don't even know you, that are praying for you to be well!
God Bless, Lisa
Dear Amanda, I am ten years old and in forth grade.I have read your story, and touched by your recovery.I live in New Jersey.I do a lot of sports.I do cheerleading,basketball,softball,and I play piano and flute.I plan to become a pediatrician.In case you are wondering I am related to Lisa Klimowich.(SHE IS MY MOM!)You are totally in my prayers.God bless you.
Katelyn Klimowich
Tracey- I am touched and very frightened by your story. My name is Margot LaPointe. I live in Brimfield, MA with my husband David and son Nathan, 12 years old. Nathan was recently diagnosed with Nephrosis. He is two weeks inot steriod therapy and is showing some improvement. Without a Biopsy, there is no way to know for sure what type of Nephrosis Nathan has or the ling term prognosis. He has very similar symptoms that Amanda does and I worry every day that he will experience more sickness and pain as time goes on. Nathan had Mono in late October and the Doctors at Childrens believe the two are related. I wrote because I am amazed at Amanda's strength and want you to know that Nathan and I have included her in our prayers. Bless you.
Margot LaPointe
Dear Amanda, Just a note to wish you and your family a Merry Christmas. I still think of you and pray for you. We are praying for a cure for FSGS and similar diseases. Our 5 year old daughter Madison just had her 2nd biopsy and her diagnosis was changed to FSGS, we are very saddened by this, but know our strength is in the Lord. I hope you get to play in the snow! My kids are praying for snow here in GA.!
Beth Turner from Georgia
Dear Amanda we are praying for you howare you doing? We are sorry that you are sick!
Wyatt ChRIs
HI Amada I'm praying for you hope you get well amanda
im so sorry to here that amanda
kielie
Hey guys, Just a short note to let you know we're thinking about you, and you're all in our prayers! Merry Christmas! Love, Lisa Morigeau, Kirsten and Rachel
DearAmada, Hope you geat beter
Hi its Jacob and Zak.We were just wondering how you were feeling.We were also wondering how many times you've been in the Hospital.And we were wondering how many times you've been in school.We have to go see ya.
Jacob andZak .
I frequently read your updates and continue to be amazed at your family's strength and admire your faith. Keep hanging in there and I hope your family has a very merry Christmas.
Kelly - LV, NV
Tracey: I don't know where to start. I stumbled upon your website the other night when I was feeling very sad and sorry for myself. My son, Ian, had a transplant in August, 2004, and we have been through numerous complications. All that I am told are very abnormal for a transplant child, but, when reading through your website, nothing, compared to yours. You have given me strength, and more importantly, I know that my son is not the only one's with feelings of "why did we even do this", etc., any more. If you would like to email me, please do at trahastings@yahoo.com. My son, Ian, is part of a study of non-steroid post transplant studies that started at Stanford. Actually, when he contracted EBV, one of our dr's. contacted Stanford regarding the study because Ian was in such a bad way. I pray for you and Amanda, and I think of you often. You are giving me strength. Tracy Hastings, Huntington Beach, California. P.S. Ian had his transplant at Cedars Sinai in Los Angeles.
Tracy Hastings
I just sent you a massage but I just want to say don`t say thank you to me .I say thank you to you.And I just sent the wrong EMAIl.
Kaelyn Castle
Dear Amanda, I feel so bad for you I wish I new how you felt. My name is Kaelyn Castle, and I live in Bermuda.I am real close with God so I will get my family to pray for you.Prayer is power.
Kaelyn Castle
Hello Amanda, i saw ur story on this page when i was surfing the net. God knows i was broken in the heart and tears shore up in my eyes. I cannot do more than say a this little prayer for u..."may the Good lord, who has inspired the doctors to unveil this ailment, grant them the ability to treat u...He will heal u, for this reason was the blood shed" Amen. Myself and my friends wish u a speedy recovery. Luv from Nigeria
chris
hi amanda this is andrea i just got home from the hospital i am doing fine i hope u doing better i keep praying 4 u and me to get betterand me and my family send alot of love to u and ur family talk 2 u later and god bless
Andrea
I recently left you a note about my son Drew being diagnosed with same disease as your daughter Amanda, unfortunatly Drew passed away suddenly on September 3,2004.I wish there was more known about this rotten disease that affects so many children! My thoughts are with you.
Shelley Poirier
HiAmanda, We hope you feel better.Tell your familey we said hi. How is your new kidny working?
Nycole and Leanne
Amanda is a strong child and tracy, you are a strong mother. May god bless your family abundantly! Tomorow my son John will be having a kidney biopsy to see if he has a disease and how it can be treated. He shows no outward signs of illness. It was detected in a routine well child check-up that his urine had blood and protein in it. We are a faithfull family and believe in the power of God. My prayer will be with amanda and the rest of your family for these are hard times. I wish Amanda good health and blessings from God. Peace in God Lisa Klimowich
Lisa Klimowich
hi Amanda my name is Abby. I hope you feel better.
Abby
Amanda, stay tuff and keep thinking positive..Have the attitude that you are going to beat this it is not going to beat you. I pray for you and know what you are going through. I have FSGS. Keep smiling and positive. With sincere wishes Jim Warnsing
Jim Warnsing
Hi Amenda I was in your church on your 8th birthday, I think it was. I was visiting my friend Leoda Hall. I live In Calif. Leoda has kept me up to date on how you are doing. I have put you on our prayer chain, and I know that God answeres prayer and that he heals today just like he did in the days he walked the earth. I will send this site to as many people as I can. You are a beautiful precious child of God and I know that he is holding you close to His heart and that He loves you and your family very much. May God Bless you and your Family.
Kathleen Stockman
Dear Tracy and family, This is from your friend in Dayton, NV. We are all praying for you. I think of you every time I look across the street. I miss you all very much. My grandkids ask about you all the time. The updates are very helpful. Keep the faith, be strong, and God bless.
Janet Hinds
Dear Amanda, We love you and we are parying for you. We are trying to stay strong for you, we miss you everyday. Love from Hannah, Sharron & Richard
The Baldwins
Dear Amanda, You are one very strong,amazing,beautiful girl.I pray for a total recovery for you.You are truly Blessed!
Elaine
Amanada, May God watch over and Bless you daily! My 2 year old had at heart transplant at 14 months and has had to overcome so much. I know God will heal you!!
Tammy Madden
I, too, suffer from FSGS. I know that I cannot be alone in saying that I greatly admire your perseverance and courage, and wish only the best for you in the future. You are a positive role model for all, and deserve only the best of what the future has to offer. Best wishes, and much love.
Sarah Dubina
Hi, my name is bernard afedzi. and I would like to understand about your information you put on the internent, so how can I get further explaination. thanks
Ghana
Hi Tracey and Amanda. I've noticed a few college softball connections here already. Well I'm another one. I'm so inspired by your moms strength and your bravery. You must get your competitive, never give up attitude from your mom. You are such a beautiful little girl and you're always in my thoughts and prayers.
Chris Madrid
I'm so sorry about your sickness.
chace
Hi Amanda my name is abby. Hope you get beter.
abby
I'm Kenzie and I'm sorry your sickness and I know your friend Sue Strekal
Kenzie Price
Amanada- I hope yoyu are starting to feel better. I am battling my own kidney issues and cant imagine how hard it most be for a little girl your age to go thru all of this.
pam
Amanda, Appreciated the update on your families move to California. Trust your test today goes well. Know that it's hard to continue to continue with these various tests and not get the answers we'd all like. thought you might enjoy these recordings from flight maintenance people while they try to fix airplanes based on pilot's notes. After every flight, pilots fill out a form called a gripe sheet, which conveys to the mechanics problems encountered with the aircraft during the flight that need repair or correction. The mechanics read and correct the problem, and then respond in writing on the lower half of the form what remedial action was taken, and the pilots review the gripe sheets before the next flight. Never let it be said that ground crews and engineers lack a sense of humor. Here are some actual logged maintenance complaints and problems as submitted by Qantas pilots and the solution recorded by maintenance engineers. By the way, Qantas is the only major airline that has NEVER had an accident. (P = The problem logged by the pilot.) (S = The solution and action taken by the engineers.) P: Left inside main tire almost needs replacement. S: Almost replaced left inside main tire. P: Test flight OK, except auto-land very rough. S: Auto-land not installed on this aircraft. P: Something loose in cockpit. S: Something tightened in cockpit. P: Dead bugs on windshield. S: Live bugs on back-order. P: Autopilot in altitude-hold mode produces a 200 feet per minute descent. S: Cannot reproduce problem on ground. P: Evidence of leak on right main landing gear. S: Evidence removed. P: DME volume unbelievably loud. S: DME volume set to more believable level. P: Friction locks cause throttle levers to stick. S: That's what they're there for. P: IFF inoperative. S: IFF always inoperative in OFF mode. P: Suspected crack in windshield. S: Suspect you're right. P: Number 3 engine missing. S: Engine found on right wing after brief search. P: Aircraft handles funny. S: Aircraft warned to straighten up, fly right, and be serious. P: Target radar hums. S: Reprogrammed target radar with lyrics. P: Mouse in cockpit. S: Cat installed. P: Noise coming from under instrument panel. Sounds like a midget pounding on something with a hammer. S: Took hammer away from midget. Smile God loves you and your family and so do all your friends who know you through Aunt Gay in Atlanta. Peace and prayers. bob hayes
bobhayes
Hi Amanda, You don't know me, but I'm good friends with Gay Allen, your cousin in Atlanta. Just wanted you to know you are in my thoughts and prayers. You are such a strong girl and carry a wonderful, uplifting positive message for all who have the privilege of knowing you. Keep smiling :-) Your courage and faith are very inspiring to me.
Charles Needle
Dear Amanda, Tracey, Jacob and Jessica, Hi!! We miss you. I ALWAYS think of you when we walk by your house on the way to school. I hope that you are all doing well in your new home. Can you feel the love we are sending you from Carson City? :) We are remembering you in our prayers.
Love, Gail Struble and Family
Our Ladies' Tuesday night Bible study continues to pray for Amanda's health and well-being. We are also praying for the family as you relocate and as you again can be a whole family. Our love and hearts are with you in this valley through which God is leading you.
Glenda Jansson
MAY GOD BE WITH YOU!ALL THE BEST TO YOU! GET WELL!!
pam hall
Dear Amanda, Just a note to let you know that our family is still thinking of you all and praying for you. I hope you are happy in your new home.
Beth Turner from Georgia
Hi Tracey and Amanda, My name is Delanee and I also played softball with your Mom at CSUN. We actually lived together for a time. I enjoyed looking at your pictures. I noticed you playing with a doll house. I have a little girl who is 3 years old and loves to play with dolls. I know she would love to play dolls with you! You keep up fighting so we can get together soon and play dolls ( if that is not to babyish for you now). I remember meeting you when you where just a little baby. I really would like to meet the very courageous and brave young lady who have become. Your strengh and faith is amazing! Tracey your strength, courage and faith is an inspiration to me. Lisa has keep me updated on Amanda through e-mails. My children and I, pray for you all every night in our prayers. I guess this experience is sort of like running a 10K. No matter how much you may want to give up, you don't, you keep the faith and you just keep going to the end. I know you can make it. Stay strong. We all are thinking of you and sending prayers!
Delanee Durham and Family
Hey cutie, we miss seeing you and laughing and playing. Can't wait until Kelly is no longer getting treatments on 2 North so he can visit you. That should be in August. Hope you are finding things to stay busy with and enjoying your summer. I saw you when we were there this last 2 weeks, but you were asleep so I just talked to your sister and your Mom. Take care kiddo. Love you, Becky Moravec PS. Kelly says "Hi"
Becky Moravec
My 4 yr old niece has been diagnosed with minimal change nephrotic syndrome, she is on steroids and eating a lot but has gone down from a size 5 or 6 to 2 toddler and is having severe headaches. Any advice?
Kay
Hello we are your next door neighbors (the ones with the pig :) ). Even though we hardly had time to get to know each other, our thoughts and prayers go out to you and your family. We hope to see you soon!
The Mercers, Scott, Shirley, Melissa and Ashley
Hi Tracey, I don't know if you remember me but I certainly remember you. I was the CSUN player with the nicest tan.I have been speaking with Lisa and she has caught me up and has been keeping me up to date on Amanda. Amanda, you, and everyone else in your family are in my prayers daily. Pri
Priscilla Becker (Pri Rouse)